skyblue Posted June 3, 2010 Report Share Posted June 3, 2010 Gee I hope this makes sense...I have lupus, chiari (My skull is malformed and my brain is herniated through my neck putting pressure on my spinal canal), a heart condition called pulmonary hypertension and degenerative disc disease that has cause pain my legs. It wasn't until about 5 years ago that they actually found most of this. It was a relief after being told so many times that the symptoms were psychological, to actually have diagnoses to go along with them. I've gone through so many medical tests and procedures without complaining... with actually pretending those procedures and tests didn't hurt or I wasn't afraid because I have no one to complain to. I'm in my 30's and live with my parents because I've had these problems my whole life. I am so tired. If you've seen earlier posts you know I've been protecting my family my whole life from things I thought would hurt them. From avoiding anything that would remind them of the abuse I suffered, to now not even letting them know the level of pain and fatigue I am in. I suffer pain rather than taking pain medication so they won't know how bad it is... well to be honest I also do it because I'm afraid of becoming addicted to pain medication. My doctor assured me that when you are in the kind of pain I am in it is not "addiction" but a necessary medication. Still not sure I believe that rationalization.I've never heard of mental health support groups or therapy for medical conditions but I need something to change. What I'm doing isn't working for me. I'm so tired and I need help not only with that but someone to talk to just to get help in making some of those medical decisions that are so frightening for my parents to listen to and my doctors are too afraid of being sued to tell me what they would do. Is there anything out there like this?Thank you Link to comment Share on other sites More sharing options...
This topic is now archived and is closed to further replies.