shanrucas Posted December 15, 2010 Report Share Posted December 15, 2010 This is the first time I posted here...I have been taking care of my mother, with very little help from family..I have one relief caregiver during the week for about 4 hours, no one on weekends. My mother does not qualify for any sort of assistance because she an income from retirement. She is in the progressive stage of MS and has been bedridden since 2001. I am an only child, she has a sister who lives nearby, but rarely calls or comes by.. I find that I am slowly becoming bitter about this fact..as well as totally frustrated with health care..she has to pay out of pocket for many things that insurance won't pay for..such as transportation, medical supplies and other things that would make her more comfortable.In the last year I have seen her MS progress even more, she has so many needs I wonder if I can keep up. I am trying to manage as best as I can, but I feel so alone in doing this and so confined. I have no income of my own and because I have to take care of her..I can't find a job that would accomendate. I have bipolor and PTSD and this has triggered me in many ways, some days I don't know whether I am coming or going.I have a great deal of guilt for the times I have become frustrated and angry at the world. My mom has a wonderful, outgoing personality and its so hard to see her like this. MS is slowly taking her away from me..I know she will not die from having MS, but will die from complications assoiciated with MS. She is going to be 70 in March. She has had MS for most of her life, but never let it stop her, that is why its so hard to see her like this..logically I know this is why her sister or friends never come over or call...but I need support, this is not easy and I wouldn't wish on anyone. I had to tell a friend that wanted to come and see me that tonight wasn't a good night, mom was having a hard time getting comfortable and I wouldn't be good company..this is happening more and more. I feel so isolated.Thanks for letting me vent here.Shannon Quote Link to comment Share on other sites More sharing options...
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